Part one of four:
I am the mother of two boys, both with the diagnoses of
Autism Spectrum Disorder (ASD). As an
activist for my children’s education, I have dealt frequently with the public
school’s special needs resources. I personally believe that the public school system does not have the necessary
accommodations and resources to meet the needs of an ASD student.
Autism/ASD is a mental condition causing social quirks,
sensory disorders, difficulty with language development, and an uneven
distribution of strengths. Children with
ASD are not all alike. One cannot tell
if a child is autistic from simply looking at him/her. Those with ASD are vastly and uniquely
different. While one child may be able
to communicate fairly well, having a vast vocabulary and only struggling
occasionally with a sound or two, another child on the Autism Spectrum may be completely non-verbal.
Both of my children have the ASD characteristics I
mentioned above, yet my oldest child’s characteristics are much more profound
than those of my youngest. This is where
the spectrum comes in; William, my oldest, is higher on the spectrum than
Richard, my youngest.
William, my very serious, brown haired, blue eyed, nine
year old, truly struggles with connecting his brain to his mouth. He knows so much, yet he cannot voice it. The first time he and I were able to have
even a basic conversation, exchanging thoughts in spoken words, he was five. Most kids begin talking in conversation
around their second birthday. Besides
the verbal concerns, he has some extreme sensory issues with ground
surfaces. Grass, dirt, gravel, or any other area you may
walk on that isn't flat, becomes a chore for him. And that sensation of air sweeping across
your face and ears, we call wind, is a huge sensory issue for him. His social cues are off as well. He doesn't always get or understand why a kid
is looking at him a certain way. Is he smiling because he wants to play with
me or because he hates me? Because
of these issues the usual activities most boys his age enjoy (games of tag, riding a bike, playing catch..), are all a battle for
him. So he prefers to play alone and indoors.
Richard, my hyperactive, blond haired, blue eyed, seven
year old, who talks a lot and rarely takes a breath in-between sentences,
struggles, but not like his older brother.
Though his speech was delayed, we have been talking in great lengths of
conversation since he was four. The struggles
you can see most in him are with social quirks and sensory issues. Having no personal space, a one track mind,
and wanting to touch and feel objects with his mouth, chewing, licking, and
tasting them, like babies do when discovering a new toy. Although Richard has no problem talking with
others, he prefers to talk about trains.
This has been an obsession of his since infancy, when he saw his first
train outside our apartment’s windows. Richard’s
social cues are a bit off as well. He
doesn't understand while playing with another child, why that child might have
paused, signaling to Richard it’s his turn. Likewise, Richard doesn't know how to stop or
pause to let the other child know it is their turn. He prefers to play next to someone instead of
with them.
Both of my children went into the public school system
at a very young age, three. They spent
two years in pre-k before starting Kindergarten. It was because of their diagnoses of ASD that
I placed them straight into the public school system, hoping for early
intervention. It has been proven by
experts in the ASD field, that early intervention makes for the greatest leaps
and bounds in treating ASD. At first I
was thrilled with the services they were receiving and breaks I was getting. Though throughout the years, as I have met
with Principals, teachers, therapists, and other school faculty members, the
less satisfied I have become.
We all meet, at least annually, to set up and discuss an
Individualized Education Program (IEP).
An IEP is a legal document with a truly individualized plan for a
student with a disability. Things
written in an IEP include accommodations made for the disabled student, such as
therapies, disciplinary actions and teaching methods. Basically an IEP is a plan parents and faculty
set up, which in hopes will create the best results in a disabled child’s
education. Providing them with the
necessary accommodations and resources needed to succeed. It is through these meetings that I have
discovered both federal and state changes that affect how the schools run. Some resources that are needed and/or can help
a child with ASD that were available at one point, no longer are, and other
necessary resources never have been.
Our economy has changed and with it has come budget cuts
in our schools, leaving less money to pay for therapies these kids need. Classrooms themselves have become larger and
the staff and resources smaller. Programs
have changed and changed again. Especially
with the No Child Left Behind Act and now with the Common Core. Though awareness of ASD needs has risen,
accommodations and resources have not.
My experience with ASD, is not only with my own
children. I know and have met a large
amount of others with the diagnoses, through the Special Olympics program and
Autism help and awareness programs, like that of the New Mexico Autism
Society. I have learned that it is vital
in an ASD pupil’s educational progression to have certain accommodations and
resources available, which include: Applied
behavior analysis (ABA) therapy, speech therapy, physical therapy,
occupational therapy, one-on-one learning and/or a personal aid or tutoring,
vast ways of teaching a subject, alternative assignments, extra testing time,
adjusted testing, social skill support and guidance, frequent breaks, allowance
of objects in the classroom to help relieve stress and/or sensory issues.
ABA therapy, physical therapy and a personal aid or
tutoring have never been available to my children through the schools. This has been frustrating, as I believe these
help tremendously in academic progression.
I have been able to get William physical therapy outside of public
school, through Medicaid. And I was able
to get Richard ABA therapy and tutoring outside of public school, through a
state program. However Richard doesn't
need physical therapy and I have been unsuccessful in getting William the same
state program for ABA and tutoring, due to it being somewhat of a lottery
program. Though through the public schools
they both have been able to receive speech therapy. Therapist occasionally come into the classroom
and work with them one-on-one and as a group.
The therapists also pull them out of their main stream classroom and
take them to a different room for one-on-one therapy and group therapy. Both have been pulled out of their classrooms
and gone to a special education classroom for one-on-one and group help in
reading as well. William has received
help in math through these special classrooms too. As the years have rolled by though, the less
one-on-one time they have received in these therapies. And while they have been pulled out, they
have missed other lessons and assignments, causing them to have to play
catch-up in their regular classroom. This
has caused them to be slower in other areas.
For instance, at first William was only being pulled out for
reading. While pulled out he was missing
math lessons in his mainstream class and he began to fall behind in math. Causing the school to pull him out for help
in math and reading. It is because of
this, pulling a child out of their mainstream classes for help, that I don’t
believe the current system is working. William
also received an iPad through the schools to help support and teach him in an
alternate way. Though they never showed
the teachers how to incorporate it in the classroom. It became a toy for him as no one used it
academically. This I have seen happen to
everyone I know who was issued an iPad for support. Both William and Richard have had a few successful
alternative assignments, with visual cues and sight words and a few different
ways of teaching a subject. It is hard
for a mainstream teacher to teach in vastly different ways, when working with a
group, they tend to stick to whatever method gave the best results overall and
what method the No Child Left Behind Act, or now Common Core, is requiring them
to teach. William and Richard have had extra
testing time, adjusted testing, social skill support and guidance and have
received frequent breaks. Richard in one
class was even given a special seat with a soft cushion to sit on. This seat
seemed to help him stay focused better. He
also received special sensory objects he could chew on, so he wouldn't be
placing other classroom objects in his mouth. Like he was with markers, toys,
his clothes and classmates. With William’s
Autism he has never needed special objects in the classroom. And although the schools have had
occupational therapy available, my children have never needed it.
It is because of the lack of, and quality of some of
these accommodations and resources, William has fallen through the public
educational system cracks, slowing his progression down. This year after our IEP meeting, it was
apparent that he would not have any one-on-one time. This I believe to be the most vital accommodation
and resource in helping an ASD pupil succeed academically. In each new grade William has entered, the
student to teacher ratio has increased, making it harder to work one-on-one. I knew this would cause his progression to
slow down even more or possibly even stall it. So at the beginning of this school year I
pulled him out of the public school system.
I am able to provide William with one-and-one time and with more of the
accommodations and resources I listed, than the school is able to now.
What surprised me the most when I informed the school of
my decision to pull him out was their immediate support. They are very aware they cannot meet his
needs and thought homeschooling would be a better option for him.
Since pulling him out I have seen his progression rise. I have met many other ASD parents who have
also found that homeschooling is the better option for their ASD
child/children. As well I find it sad we
can provide them with more at home, than the public school system can. I am but one person, with limited resources,
they have an entire faculty. And it
would make sense that they would have the access to resources I do not, with the
funding they receive.
But with the student to teacher ratio gap widening, I
see that it is almost impossible to make accommodations to a student with
special needs, even when an ASD child is placed in a special needs resource
room, a special education class for those with disabilities only. In these classes, unless your child’s special
need is physically and visually apparent, like those with Down syndrome and
Cerebral Palsy, the needs of the less noticeable are usually pushed aside to
meet the needs of the more obvious ones.
Many special needs children that are apparently special needs demand a
lot more daily task help. Most ASD
pupils do not need assistant with daily activities once in grade school. They can use the bathroom alone, feed
themselves, and do the other necessary day to day tasks needed to function on
one’s own. In these classrooms it is easy
for a functioning ASD student to be overlooked.
Many non ASD disabled children cannot do their day to day tasks and
daily work without help. A teacher of
these students will usually care for the non ASD child first, knowing that the
ASD child will be fine on their own. I
have seen this and have seen many days go by, where the teacher never makes it
to the ASD pupil. ASD experts also
advice against ASD students being placed strictly in a special needs classroom,
saying they thrive more in a regular classroom.
ASD children are able to successfully co-mingle with non-special needs
children and it is actually good for them to do so. Mingling with other children without
diagnoses sets examples for them as to what is and isn’t socially
accepted. It also helps them to grow, to
play and communicate with others who know when to pause for a turn or know that
when you’re smiling it means you’re happy. This environment is teaching them. ASD children have the ability as well to keep
up with their other classmates academically.
So there is no need to be placed in a classroom where the academics standards
are different and they will be pushed aside to meet the needs of a more severe
special needs pupil.
I also see though how difficult it is to provide a
student in a regular classroom with outside classroom therapies and not miss
anything while outside the classroom.
No matter how much reassurance I have gotten that they won’t miss
anything, they do. Leaving the student
more confused about assignments due and falling further behind in their
academics. Through homeschooling
William, I have been able to assure he is not missing a lesson. He is not being taken away from one lesson to
work on another lesson, or past lesson, or therapy. He receives physical therapy and speech
therapy through Medicaid. I can change
the way I am teaching a lesson if it is not working for him. I can adjust the way I test and the timing that
he is tested. I can allow him frequent
breaks, give him social skill support and guidance. Though I am unable to give him ABA therapy. I am learning more and more on how to teach
him, and am having more success than the school. He is on par with all of his studies but
reading now. And I have high hopes he
will be on par with that, within the next year. He is still Autistic, still has the same
quirks, though his education is progressing and at a faster pace than when in
public school.
Richard, my youngest, as he is not as severe on the
spectrum as William, I have chosen to keep in the public school system for
now. He loves public school and is
progressing with the other students in a regular classroom. I have been able to get him outside school
help, ABA therapy and tutoring, which I was unable to get for William. I believe this is what has helped with Richard
in his progression in the public schools.
My purpose of writing this paper is to bring awareness, that
the public school system does not have the accommodations or resources to truly
meet their ASD pupils alone. Schools
need to hire aids for each classroom and teachers need to have the training to
teach an ASD pupil. They need to have
all the resources I have mentioned above available, without taking away from
their standard academics. I believe ASD
pupils unfortunately are not able to progress in the way that their non ASD
peers are without these accommodations and resources. From my experience the Public school system
does not meet the needs for an ASD pupil to succeed in the system.
(Written in February of 2014)